On March 9th, Saturday night, 2013, Zahava passed away at the Royal Brisbane hospital from a cardiac arrest.

Although it came as a shock in some ways because she was showing signs of improvement and stability, having spent almost two years in hospital she was always vulnerable.

We are all struggling to cope with the loss of such a loving person taken from us too soon.

The funeral arrangements are now set. If you are a friend of Zahava you are welcome to attend –

2pm Friday March 15
Albany Creek Crematorium
400 Albany Ck Rd
Bridgeman Downs

At the lakeside Chapel.

No traditional funeral clothes, Zahava did not like that style of ceremony. Feel free to dress as colourful as you like.

Thank you again for all your support and love during this time, Zahava and her family appreciate it immensely.

Yaro and Phil

Zahava has now been in hospital for over a year. Thankfully, besides a brief throat infection that needed treatment with antibiotics, we have had a relatively event free last few months.

Zahava continues to show progress, albeit on a very up and down basis. She spends a lot of time sleeping, in fact similar to the schedule a teenager keeps, sleeping through most of the mornings. When she is awake she can be very alert and interacts with everyone, watches DVDs and does her therapy. Overall she is in good condition, even though she doesn’t do a whole lot of moving around.

This week we have a meeting scheduled with the Ear Nose And Throat doctors to get an update on the progress with her trachy. We still hope that one day the trachy can be removed safely, but we are also learning about options if it is not.

That’s all the news I have for you now. Of course Zahava loves having visitors, so you are welcome to drop by between the hours of 11am and 1pm and 3pm to 8pm, 7 days a week. Even if you just have 20 minutes to tell Zahava what you have been doing with her life, that would be wonderful for her.

Yaro

It has been three months since the last update. We are still in the hospital and Zahava is still on the road to recovery.

Things were going great at the start of 2012, but unfortunately an accident at the hospital in February caused a very dramatic experience for everyone.

Zahava was left alone after being changed by the nurses and did not have her arms secured, which is a precaution taken to make sure she does not pull the trachy from her throat. We do not know exactly what happened because no one was there, but Zahava managed to pull the trachy out herself, which she cannot breath without and was not discovered by nursing staff for 10 minutes.

By this point she had almost passed out, had turned blue in the face, and her heart eventually stopped. She was found, an emergency was called, she was resuscitated and a new trachy put in place. This led to a long weekend spent back in ICU, with Zahava in a situation very much like where she was when the stroke first occurred – not very conscious and not moving very much at all.

It was very hard for Phil and me, and of course Zahava, as we felt like we had climbed a huge mountain only to be pushed right back off just as we were reaching a milestone.

The doctors all told us that because it was a second injury to Zahava’s brain, recovery was not likely, and there was a good chance she would have more brain damage. They also suggested we call in the Palliative care team, which we did.

After 5 days in the ICU, Zahava was taken back to the stroke ward to her old spot, in a condition similar to where she was 6 months ago. We then waited once again for her to show signs of recovery.

Thankfully Zahava defied the doctors and showed signs of recovery almost immediately after returning to the ward. Her speed of recovery has been a lot faster this time as well, as it appears the damage to her brain was minimal.

I am pleased to say that six weeks now since the accident, Zahava is almost back to where she was before it. She is awake, aware and communicative (no voice still of course) and continues to work on her therapy.

Removing the Trachy is still our main goal, but the speech therapists are being extra careful as Zahava has had to once again relearn how to use her tongue, mouth, and swallow properly.

We continue to take each day as it comes, work on physio for her body, coordination with her occupational therapist, and saliva control with her speech therapist.

Visitors are most welcome as Zahava loves seeing her friends when they pop in and enjoys listening to updates from your life.

Thanks again for your well wishes, on behalf of Zahava, Phil and Yaro.

Happy christmas to those who celebrate. I’m writing this on Boxing day here in Brisbane, at the hospital next to Zahava. She is sitting in her oxford chair reading a cosmopolitan magazine Phil bought for her.

Since updating you last October Zahava has slowly and steadily progressed. The improvement curve is very slow, but it is heading in the right direction.

The trachy remains the big goal – to have it removed. Zahava had surgery on her throat a month ago to remove some scar tissue that had built up from having the trachy for a long time. The tissue blocks her airway, which must be cleared in order to breath without the trachy.

Zahava had the surgery under a local anaesthetic. She took about two weeks to heal properly, which was about two weeks ago. Since then her speech pathologists have begun the cuff deflations again, which is where the balloon that protects her airway is deflated so she has to handle protecting it herself.

When the balloon is down a speaking valve can be attached so air passes through Zahava’s vocal cords and she can talk. Her voice is quite “wet”, covered in saliva and gurgling, but she can say understandable words in a deep voice.

The whole process is tasking on her breathing, so sessions last for 30 minutes to an hour. The goal is to get these sessions happening every day and increase how long they go for. When Zahava can tolerate the balloon being down all the time and handle the breathing and swallowing etc by herself, the trachy can come out. At the moment it’s about stability and building endurance.

The rest of her body is improving slowly. Zahava goes for short walks with her physio and a assistant holding her up with a walker with wheels. Her left side is good, her right side is slowly getting better. Her left hand works fine, her right hand is getting better.

We do daily exercises to help Zahava with her swallow/mouth and her right arm, in addition to the treatment she gets from the hospital staff.

In terms of mood, Zahava is relaxed, except during the cuff deflations where she does a lot of coughing. Most of the time she jokes around with us, smiling and laughing, has long naps, watches tv and reads magazines. The nurses have regular treatments for Zahava to keep things stable and for the most part the days follow a similar pattern.

Visitors are welcome to pop in for short visits any time. Zahava can remember all of her long time friends very well and will greet you with a big smile. Her concentration and short term memory isn’t great, but in general she is just as she always has been.

Happy new year from all of us at the hospital.

Yaro

Hello again, here is the latest news on the recovery of my mother, Zahava.

Zahava has been through a tough month or so. Unfortunately about six weeks ago her active left hand pulled out the trachy tube from her throat one night on the weekend. This is not a good thing as it causes quite a bit of trauma and she needs it in to help her breath.

The emergency team were called in and put in a new trachy, but unfortunately the damage was done, setting us back a few weeks.

Since then she has been on a roller coaster ride of respiratory issues, often resulting in changes to plans at the last minute, multiple doses of antibiotics just in case of infection, and several not-so-fun late night emergencies. We have been taking it day by day, dealing with each challenge as it comes.

The week before last Zahava had another new trachy put in place, this time deliberately, with a new mechanism that allows some of the secretions to be removed from the top of her cuff. Since then she has had a stable 10 days thanks to some extra cautious planning doing not much more than the basics.

The goal now is to maintain the stability and slowly again begin the process towards removing the trachy from her throat so she can drink, eat and hopefully talk again. In order for this to happen the important thing is for Zahava to practice swallowing, which is what we do every day.

Physio continues, with Zahava having taken a few steps standing up, albeit with several people holding her up. She tires very quickly and sleeps a couple of hours after most physio sessions.

The timeframe for her recovery is unknown, but very likely we are talking years for a complete recovery. For the moment we take a little tiny step forward each day, with the main current goal of getting the trachy out of her throat.

Visitors Welcome

I asked Zahava last week if she would like guests to come visit and she said she is ready for people to come and say hello (with a nod of her head).

Bear in mind her short term memory is not good and she cannot talk to you, so if you do decide to come visit you have to be able to carry a one-way conversation and stick to positive subjects. Zahava would like to hear about the good things going on in your life. She can listen, and respond with smiles, yes and no with her head, facial expressions and hold your hand with her left hand.

She has good long term memory, so will remember who you are assuming she knew you before the stroke.

The best times to visit are Monday at 5Pm, Wednesday at 4PM, Thursday at 5pm or Saturday and Sunday from 3pm onwards. Phil or myself should be with Zahava during these times.

Officially visiting hours are 10am to 1pm and 3pm to 8pm. Chances are if you show up in the mornings Zahava will be working with a physio, speech pathologist, doctor, nurse or occupational therapist, so I recommend the times suggested. I also recommend you plan a short visit of about 30 minutes maximum.

Zahava is located on Level 7BNorth of the Royal Brisbane in the main building, Ned Hanlon, currently bed 48 (check at reception as the bed number can change as we get moved around if you are reading this long after the publication date).

As always, please please please keep the prayers coming, the well wishes and positive thoughts – Zahava needs it all if she is to get through this and recover something like the life she had before.

Thank you for the support.

Yaro and Phil and of course, Zahava.

Today I am happy to report that Zahava’s progress continues in a positive direction. She is now awake the entire day and we spend much of the time making jokes and laughing with her, which is wonderful. She still cannot talk due to the trachy in her throat, but she can communicate a lot using her face and head for many non-verbal expressions.

Her swallow is continuing to improve and we hope that eventually she will be able to have the trachy removed and can begin the process of rehabilitating her voice and eating food again (at the moment she eats through a tube in her stomach).

Zahava is slowly regaining some movement in the right side of her body, while the left side remains very active and continues to improve as she gains more specific control over her leg, arm and hand. Every day the physio works on her strength to move towards sitting, standing and eventually walking again.

We still have a long way to go but have high hopes that the current progress forwards will continue. It remains challenging while in hospital as Zahava requires constant help and medications, so we appreciate the prayers and well wishes continuing to help us get closer to bringing her home one day.

Thank you again for your love and thoughts,

Yaro and Phil

I have not updated this page in a while as there was nothing significant to report, however today we had a positive change.

For the last several weeks Zahava has remained in mostly the same condition with our focus on swallow training to hopefully one day remove the trachy from her throat so she can breath normally through her mouth and possibly speak again too. This is still our main focus now as the speech pathologists help her improve her swallow, tongue and mouth control so her brain can learn how to complete a swallow 100%. At the moment she can swallow but some of it goes into her lungs so she needs the trachy.

The main goodnews we had today is that Zahava can now communicate with us via nodding and shaking her head to say yes or no. I first saw her nod her head a couple of days ago but I was not sure it was deliberate and could not get her to repeat it. Today on many occasions she nodded her head to say yes, shook her head for no and was very alert with eyes open. She also read some words on cards sent to her and confirmed that she could read by nodding her head.

Naturally we are elated that we now have a means to communicate to Zahava and we hope that improvements continue, although we remain patient – there is a long way to go yet.

This week Zahava’s sister Diane and brother in law Larry arrive from Canada, so we are pleased to have more family here with us.

Thanks again for your ongoing support, prayers and expressions of love for Zahava. Please keep it coming as she has a lot more work to do.

Yaro and Phil

Zahava remains in a stable condition in the stroke ward. Her alertness remains the same, spending most of the time resting or in some kind of semi-conscious state – it is difficult to know exactly how much she is aware of. She does open her eyes occasionally and shows deliberate communication with us, but tires very quickly.

In terms of her body, she takes minor steps forward requiring less support from medicine and equipment, although she still requires a trachy in her throat to help deal with secretions.

Our focus now is building up her swallow strength so she can eventually have the trachy taken from her throat. Beyond that we hope and pray that her brain is finding a way to rewire passed the damaged areas so she will regain more consciousness and be able to talk again one day.

Thanks once again for your ongoing prayers and support, we have only begun to climb this mountain.

Yaro and Phil.

Here’s the latest on Zahava’s recovery as we head to a month now in hospital.

Things go up and down, with mum having a chest infection slowing things down and a rash too. These things are getting better and she is well looked after with antibiotics and 24 hour care. She also has a couple of other “mysteries” that are watched to see how they are going as well, although the stroke remains the main concern.

She had a new MRI last week and just today the doctors have reported back to us that the top chambers of her brain are good, it is the lower parts, in particular the brain stem where all the traffic to the top of the brain goes through that needs repair. The strokes are not big, it’s only the location that has resulted in such a big impact on her body.

The prognosis is still time as some people have recovered from this sort of damage before, but it is hard to know what will happen or when it will happen with Zahava. Because of the location of the stroke she is quite sleepy most of the day and only becomes a alert now and then.

It’s still early days in stroke time, so we wait patiently by her every day, talk to her, give her music and audiobooks, although most of the time she is resting.

As an additional request for prayers for Zahava, please add her mother, Jolie Harvey (my grandmother, Zahava’s mother), to your prayer list as well. Jolie is 90 years old and Zahava was visiting her mother in Canada where she was in hospital just before the stroke. Jolie is not well and I know my mother would appreciate your well wishes for her mother as well.

Thanks again for your ongoing support and keep the prayers and positive thinking coming!

Yaro and Phil

Zahava has been moved to a stroke ward at the Royal Brisbane. This is good because the ICU where she was always had ongoing tests and people going in and out, with no real chance for rest.

Now she is in the ward she is still constantly monitored, but not as invasively. She can breath on her own via the tracheostomy and eats smoothies via a tube down her nose. At the moment she is very tired and only rouses a couple of times per day where she opens her eyes fully and acknowledges me and phil. She communicates with her left foot, and her right side remains largely motionless, although we only ask one or two questions because she tires quickly.

At the moment her condition isn’t any worse or better, we just try and give her as much rest as she can get in between the x-rays, drugs, moving her into different positions and all the other things they do to her in hospital. Our hope is that with rest she shows increased responsiveness, but at the moment it’s all about patience.

We appreciate your ongoing support. Phil and I are with her as much as we can during the day and go home for sleep and dinner. We understand you may wish to come visit her, but for the moment please consider how tired she is and save your energy for prayers for her.

Thank you,

Yaro and Phil